[9], The Clairity Project is a website featuring a series of educational videos and vlogs hosted on YouTube which hope to inspire and educate others about living with a terminal illness. She wanted to help other affected families too. Regarding her nationality, Wineland was an American and ethnicity wise she was white. I'm willing to deal with anything.". real family is great. Sense of injustice lingers after Seoul Halloween crush, Chess gets a risqu makeover. The nine-hour surgery went well, and her mother reported that the lungs were working great. Claire Wineland (1997 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. Given the severity of the stroke and Claire's advance directive, it became clear that it was time to let her go. She attended the Santa Monica College, in California, but had to drop out of college, due to her illness. [3] The foundation offers both emotional and financial support through their Support Families Network andthe Extended Hospital Stay Grants program. The 'My Last Days' Subject Is Helping Others Live Their Best Lives", "A lung transplant gave her hope for a longer life; now her family prays for 'another miracle', "What I - and the World - Learned from Claire Winland's Passing", "AARC Congress Announces Claire Wineland As Keynote Speaker", "breathless choir Claire's Place Foundation", "I stopped doing the Clairity Project because I got screwed over", "Claire Wineland, inspirational speaker and social media star, dies one week after lung transplant", "Meet the 2015 Teen Choice Pro-Social Honorees", "Nonprofit & Corporate Citizenship Awards 2014", Claire's Place Foundation: Official Website, https://en.wikipedia.org/w/index.php?title=Claire_Wineland&oldid=1133052069, 21st-century American non-fiction writers, Short description is different from Wikidata, Creative Commons Attribution-ShareAlike License 3.0, This page was last edited on 12 January 2023, at 02:13. She was 21. Recipient of Los Angeles Business Journals Small Nonprofit of the Year, the foundation provides grants to families affected by CF, offering both emotional and financial support. You are an inspiration and brought joy to many. Search by Name. 2. The BBC is not responsible for the content of external sites. William Halford Cause of Death, Date of Death, and More! [2] According to the website, Wineland's activism aimed "to shed some light on what it's really like to be sick, and change the way we view illness and those living with it.[2], On August 7, 2017, after not uploading any videos for over a year, Wineland returned to YouTube with a new account under her real name. All Rights Reserved. I'm not an innocent and I'm not a child," she wrote in March. As always thank you to @larissaperoux For taking he most bomb ass pictures of me that will ever be taken. Read about our approach to external linking. Im grateful for all the people who donated to help me get through transplant. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social media has died after receiving a lung transplant. Ive struggled more with guys, depression drugs, family and career than I ever have with my illness. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. "It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given. Wineland miraculously came back to life. In early 2018, Winelands health deteriorated, which necessitated her to undergo a double-lung transplant. "It's not for me and never has been. She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. Revealed on her left ankle was a tattoo: the thumbs-up Dont Panic logo from The Hitchhikers Guide to the Galaxy.. . She had a popular YouTube channel, gave A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, We need to end this war, says Zelensky, after fatal helicopter crash, Iran man who beheaded wife jailed for eight years. Though there was only 1% chance of her survival, she miraculously came out of it after 16 days. Menu. She played hide-and-seek with nurses and left explosions of glitter in her wake. Sympathy . She revealed that The Clairity Project was not under her control. Wineland and a friend, Chynna Bracha Levin, wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis, published by BusinessGhost, Inc. on Sept. 21, 2012. I would like to acknowledge Claire Wineland who passed away last night. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. Wineland enjoyed performing on stage from a young age. When she turned 13, she had a routine surgery that led to a blood infection that caused lung failure after which she was placed in a medically-induced coma. Swami Vivekananda Cause of Death, Age of Death, and Other Facts! Life isnt just about being happy. Who was Ukrainian minister Denys Monastyrsky? Read full obituary. But last month, as . Claire Wineland, social media personality who spoke about living with cystic fibrosis, died Sunday, Sept. 2, 2018, of complications after suffering a stroke following a double-lung transplant,. A double-lung transplant, when successful, can add years to a patients life. Sign up here to get The Results Are In with Dr. Sanjay Gupta every Tuesday from the CNN Health team. "See y'all on [the] other side. As she faced the prospect of getting a double-lung transplant, she understood how desperate she was to live -- and give -- more. She died on Sunday September 2, 2018, after suffering a stroke following a double lung transplant. The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. The 2019 film Five Feet Apart was inspired by and dedicated to Wineland, who served as a consultant on the film. The BBC is not responsible for the content of external sites. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. I'm not an innocent and I'm not a child," she wrote in March. She joked that the squats she was doing, upon doctor's orders, would help get her more than lungs. More than 30,000 people in the United States, more than 70,000 worldwide, have cystic fibrosis, according to theCystic Fibrosis Foundation. The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. Menu. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide with a median average age of 40. I mean that seriously," she said with her signature smile and laugh, her eyes not yet dry. View All 253 Entries. [4], Wineland was born with cystic fibrosis in Austin, Texas. Its a GO!! We invite you to share condolences for Claire Wineland in our Guest Book. There is no cure, but dutiful breathing treatments which eat up hours each day can help with symptoms and complications. . she posted on Twitter, not long before she was wheeled into the operating room in San Diego. What if they poured everything into her transplant, and she didn't make it or was not able to work again, she explained later. Wineland founded the Claire's Place Foundation at age 13. When it came to her care, she knew her body best what worked for her, what didnt and how far she was willing to go. The medical team that tended to her became family. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. She was chosen to be the keynote speaker at the 63rd International Respiratory Convention and Exhibition. She was a crusader for the patients who suffered from cystic fibrosis, and other terminal illnesses. Wineland was moved by the communitys support when she was in coma. It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. This time, she was raw and allowed herself to cry. Its not for me and never has been.. I use to live half time with my dad and half with my mom, but since I got sick we . [3] At age 13, her lungs failed and she was placed in a medically-induced coma. Claire took the gift of life and her health seriously, but she didnt take herself too seriously. Claire Wineland's death was caused by stroke. She passed away peacefully, with her parents by her side. She founded her own company at 13. Claire Wineland, 21, became renowned for her posts about illness and mortality on social media. She took great care to decorate her hospital room so it felt and looked like home. Check out the death cause, death date, and more facts about the circumstances surrounding entrepreneur Claire Wineland's death. She has gone on to become an advocate for others suffering from the disease she has had since birth. "Go enjoy your life. 2023 BBC. It's not about how you feel second to second," she said. Claire Wineland as a kid She grew up in a broken family as her parents got separated when she was 3 years old, but her parents always came together in her care. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". She loved every moment of her life, even those days when she was in hospital. So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. She'd also get a butt.She knew that the call could come at any minute, and on August 26, it did. Growing up, I didnt have any role models that were sick that were doing anything with their life, ever. The family received immense support from friends, and community. It was released on the first anniversary of Wineland's death. Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. Find an Obituary . She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed. Claire Wineland, inspirational speaker and social media star, dies one week after lung transplantBy Jessica Ravitz, CNNCystic fibrosis did not define Claire Wineland. Claire, who understood the importance of organ donation, was a donor herself. Obituaries Section. Claire Wineland Dies at 21 After Receiving Lung Transplant Inside Edition 11.4M subscribers Subscribe 69K 2.8M views 4 years ago #InsideEdition YouTuber Claire Wineland, who chronicled. She wasnt done contributing. Paul Gray Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! A post shared by Claire Wineland (@claire.wineland) on Aug 7, 2017 at 5:35pm PDT. Support Families offers personalized support and assistance in areas such as treatment, care processes and emotional support from other parent volunteers. Before signing off, Claire implored viewers to do one thing. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. There is no passionate rant to be had here I am just happy and thought I would let you all know. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. A post shared by Claire Wineland (@claire.wineland) on Aug 7, 2017 at 5:35pm PDT. Biography - A Short Wiki Entrepreneur and founder of the award-winning non-profit organization Claire's Place Foundation, which provides support to families living with Cystic Fibrosis. Claire Wineland Popularity Most Popular #8596 Born on April 10 #35 Entrepreneur #31 "Claire's gift is huge, I want your family to know that your daughter is a hero. See the events in life of Claire Wineland in Chronological Order, https://verilymag.com/2016/12/claire-wineland-cystic-fibrosis-living-with-chronic-illness-inspiring-women-news-1612, https://www.tah-heetch.com/claire-wineland-on-cystic-fibrosis-death-wish-coffee-company-hjh9onjzix7b1usu.html, https://www.mirror.co.uk/news/us-news/youtube-star-claire-wineland-dead-13190564, https://www.lionsroar.com/claire-wineland-cystic-fibrosis-activist-dies-at-age-21/, https://centredailytimes.org/health/claire-wineland-dead-21-youtube-star-passes-week-undergoing-44680242, https://www.wpsdlocal6.com/2018/09/03/she-expected-to-die-young-then-came-the-call-that-offered-new-life/, http://www.newindianexpress.com/entertainment/english/2018/sep/09/documentary-on-author-activist-claire-wineland-in-works-1869742.html. Its about what youre making of your life and whether you can find a deep pride in who you are and what youve given.. She never emerged from her medically induced coma. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide, She started a YouTube channel in which she spoke about her experiences, Cystic fibrosis drug cost 'should be lowered', Jeremy Renner TV show poster edited after accident, Maximum two drinks a week, Canada guidance advises, Baby among six killed in possible cartel hit in US, German police deny Greta's detainment was staged, US porn star declared unfit for sex crimes trial, Keep cake away from office, says food adviser, Graceland estate will stay in Presley family. Despite this, she maintained a large following on Twitter and Instagram, speaking frankly about her life and sharing personal moments. "It hurts everything inside of me to make this video," she said into the camera. The grants have enabled families to pay their mortgage, rent, medical bills and other essential living expenses. She had a popular YouTube channel, gave Youll be missed deeply. She wasn't done contributing. I have my mother and Ellie is my sister. Yeager, who lost and quit jobs as hospital stays dictated, always marveled at her daughters aura and her ability to lift up those around her. By mid-August, she was back on and feeling ready.She'd worked hard to get there, was focused on her self-care and getting stronger. She was a voracious reader and wrote books like- Every Breath I Take, and Surviving and Thriving with Cystic Fibrosis. Despite suffering from a critical illness, she maintained a positive attitude to life. A quarter of Claire's life was spent in the hospital. At a TEDx talk she gave last year, Claire made a point of saying how cystic fibrosis helped give her a quality of life. It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure. Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. [2] Inspired by the community's support while she was in a coma, she launched the 501(c)(3) non-profit to provide support to children with cystic fibrosis and their affected families. After work hours guitarist, DJ, record label owner and New York style pizza aficionado. By asking for it, she said, she could relax and get in the headspace for whatever would come next.Before signing off, Claire implored viewers to do one thing. Read about our approach to external linking. She played hide-and-seek with nurses and left explosions of glitter in her wake. A post shared by Claire Wineland (@claire.wineland) on Aug 25, 2018 at 10:37pm PDT. Clip from new video- link is in the bio i explain what happened with the ClairityProject and why I stopped doing YouTube. The Extended Hospital Stay Grant program provides financial assistance to families with children experiencing a hospital stay of at least 14 consecutive days due to cystic fibrosis. Im grateful for the doctors thatll be scooping out these lungs and giving me some more life to work with. In a post on its Facebook page, the Claire's Place Foundation said: "Our inspirational founder passed away. At the time of birth, she had the life expectancy of only 5 years old. She was a part of The Clairity Project, a website that featured educational and inspirational videos uploaded on YouTube. Its objective was to inspire people living with terminal illness, to lead a better life. She had a popular YouTube channel, gave public speeches, and made appearances on CNN and The Dr. Oz Show. She founded the non-profit Claires Place Foundation to provide emotional and financial support to families living with cystic fibrosis. Claire Wineland gained prominence through her positive but realistic account of living with cystic fibrosis. But then, a mix of health and life complications took a toll and knocked her off the list, temporarily. She was a Fox Teen Choice Award honoree in 2015[14] and received the Gloria Barron Prize for Young Heroes[3]and Los Angeles Business Journal's Small Nonprofit of the Year Award in 2014.[15]. In 2017, Yeager recalled a conversation with Claire about death. Michael Jackson Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Cystic fibrosis is a genetic condition with no known cure. George Steinbrenner Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! You can have a painful life. Living a life we can be proud of is something we can control." - Claire Wineland. Pink Floyd, The Beatles, The Killers, The Rolling Stones, Ben Harper, Dr. Who, Dexter, Adventure Time, SpongeBob SquarePants, Harry Potter by J. K. Rowling, The Mortal Instruments by Cassandra Clare. Let her go Foundation offers both emotional and financial support through their support Families Network andthe hospital. 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